Im very sorry that I have not been updating the blog, it has been a very busy couple of weeks and our laptop broke so its been difficult to update the blog but here i am today am the boys are doing GREAT! I will try soon to post up pictures.
Victor: He is doing really going and gaining lots of weight! The little guy is now about 3lbs 10oz and the best part is we got the chance to dress him up! He is down to minimal settings on his nasal cannula so hopefully it won't be too long before he can come off of it. The last head scan he had showed that his bleeds are getting better, he has another scan tomorrow so hopefully that one will show more improvement. The doctors are talking about putting his intestines back together on Friday, we are very excited about that and cant wait until that is done because then we he can focus on eating and getting fat so we can take him home.
Carlos: The little man is doing good, so good that he is completly off any oxygen! They took him off his nasal cannula and he is doing great off of it. He weighs about 2lbs 8oz so he is a little smaller than his brother but he is very fiesty. Last Thursday he had to get eye surgery because he developed a severe case of ROP so they went ahead and did a laser surgery and today the doctor said that he is very pleased with the way everything went. His last head scan showed that everything was stable with a slight increase in the size of his ventricles so hopefully tomorrow we will know more about how he is doing.
I will try to update whenever Ihave a chance and hopefully I can post up some pictures soon for everyone to see.
Tuesday, December 8, 2009
Thursday, November 19, 2009
Carlos: Last time I wrote I said that they are taking Carlos off his ventilator, instead of going straight to a high-flow oxygen set up they put him on CPAP which is basically a mask that forces more air into his lungs and helps him get the hang of breathing. Well he did so good on that a couple days later they put him on a regular high-flow oxygen so now we can finally get a good look at his little face! More importantly Iliana finally got to hold the little guy. They were getting a little worried about his feedings because this poop was a little watery but it has gotten better. They are feeding him around the clock now though instead of the 12cc he was getting he is getting a continuos feed so like 2 or 3cc every hour instead of they whole thing every 3 hours. He had an eye exam and so far everything is looking normal. This boy right here is already extremly spoiled, and he definetly knows how to throw a fit!
Victor: Not much has changed with him. They still have him off his feeds but he is still getting everything he needs through IVs, and they are working great because he now weights 2 pounds 12 ounces! They are hoping to start feeding him again next week but they want to get him high-flow settings down a little bit more. They also checked his eyes and everything is looking good with him so far. We cannot get over the fact that he is gaining so much weight they say that a little bit of that might be because he is swollen but he is still doing really good!
Friday, November 13, 2009
No More Ventilators!
Carlos: Today our little man will be coming off of his ventilator! We never thought this would happen and today Iliana will be able to hold him. He is doing so good, they have upped his feeding to 11cc and is off of the IV nutrients completely. He had a head scan yesterday and there are no changes at all. This is such a big day for him and we are very excited we will finally be able to hear him cry and see his face without everything on him. I will try to get pictures up as soon as I can.
Victor: So he had to have a procedure done on Monday because he was not going poop like he was supposed to so they put some dye down into his intestines to see what was going on but it seems like he just doesn't like to poop or something because nothing seems wrong, they put him on a laxative to see if that will help and as soon as he passes all the dye out of his system they will begin feeding him again. His head scan also can back with no changes at all, and besides that not too much has been going on with him we have just been waiting to see what he wants to do next.
We are so excited that both of our boys will be off of the ventilators, this is a huge accomplishment and we hope that they continue to grow and stay in the right path. We want to thank everyone that comes to this page for their thoughts and prayers it really means alot to us.
Victor: So he had to have a procedure done on Monday because he was not going poop like he was supposed to so they put some dye down into his intestines to see what was going on but it seems like he just doesn't like to poop or something because nothing seems wrong, they put him on a laxative to see if that will help and as soon as he passes all the dye out of his system they will begin feeding him again. His head scan also can back with no changes at all, and besides that not too much has been going on with him we have just been waiting to see what he wants to do next.
We are so excited that both of our boys will be off of the ventilators, this is a huge accomplishment and we hope that they continue to grow and stay in the right path. We want to thank everyone that comes to this page for their thoughts and prayers it really means alot to us.
Sunday, November 8, 2009
Finally An Update!
First off I'm sorry to everyone that i have not updated our blog in a really long time. I come with plenty of pictures and good news though so hang tight.
Carlos:
Ok last time I was on here Carlos had just gotten his surgery. The doctors have been very pleased with the progress of his stomach. They started on feeds again this past Monday and he has been taking to them very well, they started at 1cc every 3 hours and are now up to 2cc. The bleeding on his brain has stabilized there were no changes last time he had a scan, so in the next couple days he will have another one to see how everything is up there. He is completely off all support medications, and has turned down his sedatives alot, to try and wake him up and get him a little more active. Now last night when i went in to my surprise our little man was off the JET ventilator, something we didn't think would ever happen, so next step is off a ventilator completely like his brother but Carlos being Carlos is probably gonna make us wait for a little while. The little man finally hit the 2 pound mark, and i even think he was smiling the other night. We have come to learn with Carlos patience is key he really likes to take his time and be babied.
Victor:
So as you have seen we can now hold our little Victor. The first time Iliana got to do some kangaroo care which is when they put him inside the shirt and let them have skin to skin contact which helps keep the little guy warm, and they both loved it! Since then we have held him, and we cannot wait until our little Carlos decides its time for us to hold him too. They had started feeding him the same time as Carlos and he was doing good but they had to stop because his stomach started to get a little big and he was not pooping, that caused a little worry but a couple days after he finally started to pass everything through so we think they are gonna try again with the feeds on Monday. He has been doing great off his ventilator and is off all sedation meds. His last head scan came back with no changes so he has another next week to see how things are going. Even though he has not been getting his feeds he is on IVs getting everything he needs and the little guy is now around 2 pounds 5oz!
Carlos:
Ok last time I was on here Carlos had just gotten his surgery. The doctors have been very pleased with the progress of his stomach. They started on feeds again this past Monday and he has been taking to them very well, they started at 1cc every 3 hours and are now up to 2cc. The bleeding on his brain has stabilized there were no changes last time he had a scan, so in the next couple days he will have another one to see how everything is up there. He is completely off all support medications, and has turned down his sedatives alot, to try and wake him up and get him a little more active. Now last night when i went in to my surprise our little man was off the JET ventilator, something we didn't think would ever happen, so next step is off a ventilator completely like his brother but Carlos being Carlos is probably gonna make us wait for a little while. The little man finally hit the 2 pound mark, and i even think he was smiling the other night. We have come to learn with Carlos patience is key he really likes to take his time and be babied.
Victor:
So as you have seen we can now hold our little Victor. The first time Iliana got to do some kangaroo care which is when they put him inside the shirt and let them have skin to skin contact which helps keep the little guy warm, and they both loved it! Since then we have held him, and we cannot wait until our little Carlos decides its time for us to hold him too. They had started feeding him the same time as Carlos and he was doing good but they had to stop because his stomach started to get a little big and he was not pooping, that caused a little worry but a couple days after he finally started to pass everything through so we think they are gonna try again with the feeds on Monday. He has been doing great off his ventilator and is off all sedation meds. His last head scan came back with no changes so he has another next week to see how things are going. Even though he has not been getting his feeds he is on IVs getting everything he needs and the little guy is now around 2 pounds 5oz!
Tuesday, October 27, 2009
Friday, October 23, 2009
Update
Ok first I'm sorry that i have not posted any updates all week, but it has been a tough one. Tuesday was a fairly calm day, Victor was doing well recovering from his surgery. Carlos was also very quiet and not much had changed. The doctors told us that they had never seen a baby turn around from a surgery the way Victor did, everyone is very proud of our boys and say that they have not had a set of twins like ours in a long time. Wednesday Carlos decided that he would do as he wanted and follow his brother. Now Carlos was not as sick, well did not show as much as his brother did and needed to have the same surgery Wednesday afternoon. He made it through fighting, the doctors were very pleased the way the surgery went and are very hopeful for our little guy. So for the next 14 days both boys will be on antibiotics and that will be the next time they try and feed them again. Since all of that both of the boys are doing well right now, it seems like they both want off of the ventilators so we will see how that goes these coming days. Yesterday they both had another brain scan. Carlos has not changed and is still in the same place he was last time. Victor on the other hand has gotten worse. They now say he has stage 3 and stage 4 bleeding. We can only try and stay positive we know that somewhere down the line they could have problems but we will cross that road when we get there right now it is day by day and today our boys are fighting strong and doing good, so with the bad news we do have that to be happy about.
Monday, October 19, 2009
The worst day yet...
Today has just been a really bad day for Victor. We got a call last night before we went to sleep and they let us know that Victor had to get one of the drains put back in because it looked like his stomach was acting up again, somewhere between that time and 1:30am he really took a turn for the worst. They called us again and said that we should come in because Victor was really sick and they did not know if he would make it through the night. That was probably the longest 20 minute car ride of our life. It seemed as if the world was coming down around us, when we got there we could tell that he was really sick, they had him stabilized but just by looking at him he didn't look good. We just wanted to be there for our little man, at around 8 in the morning the head doctor came to see us and talked to us about what needed to be done. They told us that if our little boy did not receive a surgery that he would die. A surgery would be the only way they could really see what was going on in his stomach and fix it the way it needed to be. The surgery would not come without risks though they gave Victor only a 25% chance of even surviving the surgery. Like i have said many times before our little men are fighters! The odds have been against them since they were still in the womb so we knew that that number didn't apply to our little guy, and about 2 hours after they started the surgery our little man was recovering nicely. The surgery went better than they had expected they were able to really get a good look inside and clean him out, they took out the infected part of his intestine and were happy that not much of it had been infected. The next couple of days will be rough for Victor it will be a difficult time but as we all know this little guy shows no signs of giving up. Now his brother Los (Iliana is gonna kill me for calling him that..haha) is actually doing really good they have been able to go down on his ventilator settings even more and the drains in his stomach are doing well. They say the wont try and feed him again for another 2 weeks but he is gaining a little weight. So things have been pretty quiet for Los the last couple of days, now he has a tendency to play follow the leader with his big brother but we are hoping this is one day he will not try and repeat.
Sunday, October 18, 2009
2 Weeks Old
Today our little men are 2 weeks old! The last two weeks have been quite the ride, and today was no different. I would say that today wasn't the best day for our boys.
Victor: So early this morning Victor started to take a turn. He had a little fever and he also needed to go back on the ventilator. They think that he has some kind of infection and they are doing test to figure out what it is and also put him back on some antibiotics. By the end of the day he started to improve and has started to go back down on his ventilator settings. He also needed a blood transfusion and for the first time he received the blood that i donated for them on
Monday.
Carlos: Lets see since he had his surgery he has been good. The drains are draining like the are supposed to and he is looking better. At the end of the night they said that he is ready to come off the ventilator but they want to wait a little bit before they take him off because they don't want to him to over work and stress himself out. We got back the results of his head scan and there was more bad news, they are telling us that he now has bright spots on his brain and that those spots may not develop all the way, which would affect him for the rest of his life. Now there is room to be optimistic because he is so premature but they want us to know what could come out of all this. The most important thing is that our boy is here with us today, what the future brings does not matter right now because no one can predict that as hard as it is to hear all of that we try to stay strong and positive. The road is not near over we have a long ways to go but we are confident our little fighters are gonna come out strong.
Victor: So early this morning Victor started to take a turn. He had a little fever and he also needed to go back on the ventilator. They think that he has some kind of infection and they are doing test to figure out what it is and also put him back on some antibiotics. By the end of the day he started to improve and has started to go back down on his ventilator settings. He also needed a blood transfusion and for the first time he received the blood that i donated for them on
Monday.
Carlos: Lets see since he had his surgery he has been good. The drains are draining like the are supposed to and he is looking better. At the end of the night they said that he is ready to come off the ventilator but they want to wait a little bit before they take him off because they don't want to him to over work and stress himself out. We got back the results of his head scan and there was more bad news, they are telling us that he now has bright spots on his brain and that those spots may not develop all the way, which would affect him for the rest of his life. Now there is room to be optimistic because he is so premature but they want us to know what could come out of all this. The most important thing is that our boy is here with us today, what the future brings does not matter right now because no one can predict that as hard as it is to hear all of that we try to stay strong and positive. The road is not near over we have a long ways to go but we are confident our little fighters are gonna come out strong.
Friday, October 16, 2009
Day 13
Ok so lets try to get everyone caught up. So Wednesday morning when Iliana called they let us know that little Carlos was going to need the same surgery that Victor had. So we were there for that and he did well through the surgery and is still doing good. It was not as bad and wasn't infected like Victors but it was still something that needed to be taken care of. Victor had a brain scan on Wednesday and they said that the bleeding had gotten a little worse. In the big picture though Victor is doing really good. This kid is crazy Tuesday night they had to put an IV in his head and before morning he had ripped it out! The next night he decided that it was time to be taken off the ventilator so he ripped out his breathing tubes! Man i just know this boy is going to be giving us problems when he gets older. So he is now completely off the ventilators, all he has is an oxygen tube in his nose and he is breathing completely on his own! Both the boys have been pretty stable since Wednesday, the drains on Carlos are draining good and the are going to take out Victors drain tomorrow. Carlos had another brain scan today but we still have not received the results from that. Here is a picture of Victor off of his ventilators its nice to see the little guy without all the tubes in his mouth, we know Carlos will probably be there soon since he seems to be following his brothers foot steps.
Tuesday, October 13, 2009
Ok so now i can finally try and catch everyone up on the progress of the boys. So Saturday morning we got a phone call from the NICU and they told us that Victor needed to get a surgery on his stomach. They had found that his intestine had an infection and was draining into his stomach, so they needed to put some tubes in his stomach so that the infection could drain out. The surgery went good they were able to stop anything from getting worse. They did try to feed Carlos on Saturday but he really didn't take to well to it so they stopped his feeding to keep an eye on him. Throughout the weekend both boys remained stable on their oxygen settings and not much more went on and has continued that way since. Today Victor has been doing really good they have his ventilator all the way on the lowest settings they can go. They don't want to take him off completely yet because they don't want him to work too hard right now. He still has the drains in his stomach and it looks like everything has cleared out. Carlos hasn't really been up to much, they were a little worried about some air in his tummy because of what happened to his brother but they did an x-ray and everything looked ok, no infection. They say he just need to go poop, and he earlier today and they were happy about that because everything is working the way it should be. The did another heart scan on Victor today we are just waiting for those results and tomorrow he will have another brain scan to see how he is doing up there. With the exception of the start of last weekend everything been pretty calm with them not too much has changed.
Monday, October 12, 2009
Quick Update
Sorry I haven't updated in a few days, but the boys are doing great. There were a couple of bumps in the road this weekend but both boys are stable and doing good. So i will bring everything back up to speed tomorrow. It has been a busy weekend for us so i haven't really had a chance to sit down and write too much but i will find some time tomorrow after work.
Friday, October 9, 2009
Day 6
I don't know exactly know how to feel today, how do i feel happy when one isn't doing so good or is running into problems but the other one is making progress?
Victor: Our little man Victor he has been pretty stable not much has been going on with this little guy. They decided to start him on a little bit of feeding because he was doing pretty good. He didn't take to the milk how they wanted him to but it was a step in the right direction. While they were feeding him he built up some air in his stomach and that's something they don't like to happen so they stopped with the feeding and put a tube down to try and get some of that air out. They will keep an eye on that because there is a possibility of infection when that happens but they already have him on antibiotics so they are not too worried about that. They will try and feed him again in a couple of days, so hope he takes better to it next time.
Carlos: Our little fighter. So today was a big day for our little guy, he had his third blood transfusion today which went well, he also had a heart and brain scan. So his heart scan today went very well, his PDA has closed so the medicine that they gave him did its job! He also had a brain scan today, I wish I could say that it went as well as his heart scan or even his brothers but our little man does have an IVH. His is a little worse than his brothers his left side is a grade 2, but his right side is grade 3. Now we don't know what this exactly means yet because it can get better and they will be monitoring it closely but it is something that has the potential to be serious and have an effect on him for the rest of his life. Once again though this little man is a fighter he was the underdog the whole pregnancy he has had so much put against him and this little boy is here! So I'm asking this if you pray please pray for him, if you don't please keep our little man in your thoughts. Oh and his mommy got to give him a kiss today!
Victor: Our little man Victor he has been pretty stable not much has been going on with this little guy. They decided to start him on a little bit of feeding because he was doing pretty good. He didn't take to the milk how they wanted him to but it was a step in the right direction. While they were feeding him he built up some air in his stomach and that's something they don't like to happen so they stopped with the feeding and put a tube down to try and get some of that air out. They will keep an eye on that because there is a possibility of infection when that happens but they already have him on antibiotics so they are not too worried about that. They will try and feed him again in a couple of days, so hope he takes better to it next time.
Carlos: Our little fighter. So today was a big day for our little guy, he had his third blood transfusion today which went well, he also had a heart and brain scan. So his heart scan today went very well, his PDA has closed so the medicine that they gave him did its job! He also had a brain scan today, I wish I could say that it went as well as his heart scan or even his brothers but our little man does have an IVH. His is a little worse than his brothers his left side is a grade 2, but his right side is grade 3. Now we don't know what this exactly means yet because it can get better and they will be monitoring it closely but it is something that has the potential to be serious and have an effect on him for the rest of his life. Once again though this little man is a fighter he was the underdog the whole pregnancy he has had so much put against him and this little boy is here! So I'm asking this if you pray please pray for him, if you don't please keep our little man in your thoughts. Oh and his mommy got to give him a kiss today!
Thursday, October 8, 2009
Grandpa is here!
So today was a pretty uneventful day with the boys. Grandpa Ozzie flew in last night so he got to see the boys when he flew in. We have just been catching up on rest and trying to get things together. Not much has changed with the boys today they are pretty much doing the same things as yesterday. Victor had to be put on his side because one of his lungs was a little overinflated but that fixed itself by the time we got there. So tonight Iliana got to change Victor's diaper! She was so excited and scared because he is just so little but she did a great job. Tomorrow Carlos is going to have a brain ultrasound to see how he is doing and another one for his heart to see if his PDA has closed.
Wednesday, October 7, 2009
Going Home
So today Iliana got discharged from the hospital, it was a mixed emotions thing we are happy to be going home but its hard to go home without our boys but they are in good hands there and we know that they will be here with us in no time. The boys got a special visitor coming today their Grandpa Ozzie is coming from California and will be here with us until Sunday so everyone is excited about that and we know he is too. We will also be taking back possession of our little Junny and Alina! :) so it will be good to have them home with us.
Victor: So today was a pretty uneventful day for the boys no major changes they pretty much stayed where there where at and were doing pretty good. Victor received his first blood transfusion. They put him back on the UV lights for a little while but was taken off of them by the time we went back at night. He went off and on insulin throughout the day which is something they say is normal. So the big thing we found out with Victor today in that he has an IHV. They say that is a very low grade 1 case so that is the least of their worries right now but they will keep an eye on it. We also found out that his PDA closed, so that was a bit of good news for him. Other than that he was a pretty good boy today and is just cruising along the way they would expect him to.
Carlos: So today we got the results of Carlos heart scan and it came back that he has a small PDA and they started him on a 3 dose of medication that should close it up. He had little thing with his lungs today where one of them was overinflated, they put him on his side and it fixed itself by the time we went back at night. He has been able to stay off of insulin and blood pressure medication. He had a little fuss when they changed his diaper they said his stats dropped pretty low but when they were done changing him he came back up, so they put him on some more medication to sedate him a little because they don't want him doing too much right now. All in all it was a pretty good day for him no major changes hes just hanging out where he is and doing good.
Victor: So today was a pretty uneventful day for the boys no major changes they pretty much stayed where there where at and were doing pretty good. Victor received his first blood transfusion. They put him back on the UV lights for a little while but was taken off of them by the time we went back at night. He went off and on insulin throughout the day which is something they say is normal. So the big thing we found out with Victor today in that he has an IHV. They say that is a very low grade 1 case so that is the least of their worries right now but they will keep an eye on it. We also found out that his PDA closed, so that was a bit of good news for him. Other than that he was a pretty good boy today and is just cruising along the way they would expect him to.
Carlos: So today we got the results of Carlos heart scan and it came back that he has a small PDA and they started him on a 3 dose of medication that should close it up. He had little thing with his lungs today where one of them was overinflated, they put him on his side and it fixed itself by the time we went back at night. He has been able to stay off of insulin and blood pressure medication. He had a little fuss when they changed his diaper they said his stats dropped pretty low but when they were done changing him he came back up, so they put him on some more medication to sedate him a little because they don't want him doing too much right now. All in all it was a pretty good day for him no major changes hes just hanging out where he is and doing good.
Tuesday, October 6, 2009
Day 3
Victor: Well today was a pretty good day for him, when we went this morning they turned off the UV light they had him on so we got a chance to see our little mans face. He was down to about 27% on the vent and they took him completly off of his blood pressure medicine and was doing a great job keeping it up. They started him on a slow insulin drip because his sugars started to go up but again thats something they expect right now. So when we went back tonight they had him all the way down to 21% oxygen which is the lowest setting on the vent! So he is doing good with that. We found out that he did in fact have a small opening (PDA) in his heart but it was nothing that is going to cause concern because that is also normal for babies this young, they have given him some medicine for it and will be keeping and eye on it. He also lost a little weight he is now a little under 2 pounds but again nothing that they are worried about. So all and all it was a good day for our little man.
Carlos: Our little guy Carlos is actually getting bigger! He now weighs about 1 pound 11oz! When we arrived this morning Carlos was on about 50% on his vent. His blood sugar levels were up and down all night, and when we got there this morning they said it was looking better and had turned his insulin down a little bit. They also took him off of his blood pressure medications because he was doing so good shortly after they decided to do a second blood transfusion because they had not given him enough yesterday and that also helped with his blood pressure. Tonight we went in and found out that they also took him off his insulin drip! His blood sugar levels were looking good, and his vent was down to about 40% so our little man is going in the right direction. They did tell us that he hates getting his diaper changed, and makes a big fuss about which is opposite of his brother who didn't make any fuss over his diaper. So I guess today was a good day for us and we hope we can stay in this direction.
Carlos: Our little guy Carlos is actually getting bigger! He now weighs about 1 pound 11oz! When we arrived this morning Carlos was on about 50% on his vent. His blood sugar levels were up and down all night, and when we got there this morning they said it was looking better and had turned his insulin down a little bit. They also took him off of his blood pressure medications because he was doing so good shortly after they decided to do a second blood transfusion because they had not given him enough yesterday and that also helped with his blood pressure. Tonight we went in and found out that they also took him off his insulin drip! His blood sugar levels were looking good, and his vent was down to about 40% so our little man is going in the right direction. They did tell us that he hates getting his diaper changed, and makes a big fuss about which is opposite of his brother who didn't make any fuss over his diaper. So I guess today was a good day for us and we hope we can stay in this direction.
Monday, October 5, 2009
The First 48
It has been 2 days since the twins were born and we have quickly learned the seriousness of the NICU. These have not been easy days for them while they try and get used to the outside world.
Victors Update:
So this is the little guy that's gonna give us the most trouble when hes older because he is a fighter. Shortly after he was born he was doing really good, he was taking to the breathing machine very well. Early Sunday they were talking about taking him off the vent and putting him on a CPAP because he was handling everything well, that quickly changed and Sunday night they had to put him on a bigger ventilation machine. He also started to have a drop in blood pressure so they put him on some medication for that and that helped get his blood pressure stable. He has been doing good on the new ventilator when he started on it they were at 100% oxygen and is now around 30%. They also did a scan of his heart and right now its looking good nothing out of the ordinary. This kid is a fighter though they normally like them kind of bundled up and together but no matter what they did this boy threw himself about as you can see in that picture, and all of this while he was under some sedation medication stronger than morphine to try and help him relax all the nurses were shocked and said there is no way he should be moving the way he was so we know that we are gonna have alot on our hands with him. As of Monday night he was doing well, he was stable on the vent, they were lowering his blood pressure medication and he finally calmed down and got some rest.
Carlos Update:
So our little man Carlos he had a rough time from the start, he wasn't taking well to the vent they put him on so put him on the bigger one (JET). Carlos came out with alot of bruising so the put him under a UV light pretty quick to try and help with that as well with jaundice, they turned it off and took off his little sunglasses so we could get that picture of him. He was also put on a blood pressure medication to help with his low blood pressure and that helped him out alot. They took blood from him on Sunday and found that his blood sugar levels where high so they put him on a slow insulin drip, which is normal and what they expect from a baby born so young since his organs are not mature enough to keep everything up themselves. On Monday Carlos had his first blood transfusion which is normal since they take so much from him throughout the day doing different test. So at the end of Monday night they backed off a little both on the insulin and his blood pressure medication, both of which he seemed to be handling in pretty well. His oxygen levels have changed up and down throughout the two days and when we left Monday night he was at about 30% oxygen. Tomorrow (Tuesday) they will be doing a scan of his heart to see how he looks so it should be a big day for him.
I've read so many stories about babies in the NICU and have seen so many pictures of premature babies on the Internet knowing it could happen to us and I thought if I was ever in that position I would be able to handle it and I would be able to stay strong. I was wrong. Seeing my boys in their isolettes with all the tubes and wires was the hardest thing I have ever had to do it hurts so much to know that I can't do anything to help my boys but I know they are in good hands. Its just a day by day thing right now we have experienced good and bad days with both boys in just the first two days and we know that there will be more we are just thankful for everyday that passes and our boys are fighting strong.
Victors Update:
So this is the little guy that's gonna give us the most trouble when hes older because he is a fighter. Shortly after he was born he was doing really good, he was taking to the breathing machine very well. Early Sunday they were talking about taking him off the vent and putting him on a CPAP because he was handling everything well, that quickly changed and Sunday night they had to put him on a bigger ventilation machine. He also started to have a drop in blood pressure so they put him on some medication for that and that helped get his blood pressure stable. He has been doing good on the new ventilator when he started on it they were at 100% oxygen and is now around 30%. They also did a scan of his heart and right now its looking good nothing out of the ordinary. This kid is a fighter though they normally like them kind of bundled up and together but no matter what they did this boy threw himself about as you can see in that picture, and all of this while he was under some sedation medication stronger than morphine to try and help him relax all the nurses were shocked and said there is no way he should be moving the way he was so we know that we are gonna have alot on our hands with him. As of Monday night he was doing well, he was stable on the vent, they were lowering his blood pressure medication and he finally calmed down and got some rest.
Carlos Update:
So our little man Carlos he had a rough time from the start, he wasn't taking well to the vent they put him on so put him on the bigger one (JET). Carlos came out with alot of bruising so the put him under a UV light pretty quick to try and help with that as well with jaundice, they turned it off and took off his little sunglasses so we could get that picture of him. He was also put on a blood pressure medication to help with his low blood pressure and that helped him out alot. They took blood from him on Sunday and found that his blood sugar levels where high so they put him on a slow insulin drip, which is normal and what they expect from a baby born so young since his organs are not mature enough to keep everything up themselves. On Monday Carlos had his first blood transfusion which is normal since they take so much from him throughout the day doing different test. So at the end of Monday night they backed off a little both on the insulin and his blood pressure medication, both of which he seemed to be handling in pretty well. His oxygen levels have changed up and down throughout the two days and when we left Monday night he was at about 30% oxygen. Tomorrow (Tuesday) they will be doing a scan of his heart to see how he looks so it should be a big day for him.
I've read so many stories about babies in the NICU and have seen so many pictures of premature babies on the Internet knowing it could happen to us and I thought if I was ever in that position I would be able to handle it and I would be able to stay strong. I was wrong. Seeing my boys in their isolettes with all the tubes and wires was the hardest thing I have ever had to do it hurts so much to know that I can't do anything to help my boys but I know they are in good hands. Its just a day by day thing right now we have experienced good and bad days with both boys in just the first two days and we know that there will be more we are just thankful for everyday that passes and our boys are fighting strong.
Sunday, October 4, 2009
The Road to Birth
Hello and welcome to our blog, we will use this to update and keep track of our boys Victor and Carlos who were born early at 25weeks and 5days. We know the road will be long and rough but these boys have been through so much already we know that they are gonna fight on strong. Just a little background first before we get to the birth.
Early on in the pregnancy we found out that ours boys had Twin To Twin Transfusion Syndrome (TTTS), basically one baby gets too much of the nutrients, leaving the other baby to basically starve the result could be deadly for both babies. Luckily we were put into the hands of great doctors at The University Of Maryland Medical Center, there they could perform a laser abrasion to close the blood vessels between them giving each boy an equal share and both a chance at survival. The surgery went as good as it could, the doctor said that it was probably the hardest procedure he has ever had to do but he felt that he did enough to make a difference.
So since then we had a brief stay in Richmond and ultimately we ended up here at the Norfolk hospital where she has been for the last two weeks. She leaked on and off until yesterday when she began having contractions. She really didn't think too much of them because they didn't hurt too much and weren't very close together, so the doctor came in and checked her out to see if anything was going on, we soon found out that she was 7cm dilated! We were rushed to an operating room for an emergency c-section. It must have been no longer than a half hour from when we found out that ours boys would be delivered until she was cut open at 6:32pm a minute later at 6:33pm Victor Albert Flores VI weighing 2pounds 2oz and 13 1/2 inches long was born kicking and punching letting out little cries! One minute later at 6:34pm Carlos Roberto Flores was born weighing 1pound 9oz and 12 1/4 inches long in the same fashion as his brother. We only got to see them for a couple minutes before they took them to the children's hospital next door where they will be until it is time for us to bring them home. Iliana is doing fine and is recovering from the c-section nicely. We know that the next couple of months are gonna be hard, there will be many ups and downs, good days and not so good days but those boys are fighters and we know we are going to get through all of this and the boys will be with us in no time driving us crazy!
Victor Albert Flores VI
Carlos Roberto Flores
Early on in the pregnancy we found out that ours boys had Twin To Twin Transfusion Syndrome (TTTS), basically one baby gets too much of the nutrients, leaving the other baby to basically starve the result could be deadly for both babies. Luckily we were put into the hands of great doctors at The University Of Maryland Medical Center, there they could perform a laser abrasion to close the blood vessels between them giving each boy an equal share and both a chance at survival. The surgery went as good as it could, the doctor said that it was probably the hardest procedure he has ever had to do but he felt that he did enough to make a difference.
So since then we had a brief stay in Richmond and ultimately we ended up here at the Norfolk hospital where she has been for the last two weeks. She leaked on and off until yesterday when she began having contractions. She really didn't think too much of them because they didn't hurt too much and weren't very close together, so the doctor came in and checked her out to see if anything was going on, we soon found out that she was 7cm dilated! We were rushed to an operating room for an emergency c-section. It must have been no longer than a half hour from when we found out that ours boys would be delivered until she was cut open at 6:32pm a minute later at 6:33pm Victor Albert Flores VI weighing 2pounds 2oz and 13 1/2 inches long was born kicking and punching letting out little cries! One minute later at 6:34pm Carlos Roberto Flores was born weighing 1pound 9oz and 12 1/4 inches long in the same fashion as his brother. We only got to see them for a couple minutes before they took them to the children's hospital next door where they will be until it is time for us to bring them home. Iliana is doing fine and is recovering from the c-section nicely. We know that the next couple of months are gonna be hard, there will be many ups and downs, good days and not so good days but those boys are fighters and we know we are going to get through all of this and the boys will be with us in no time driving us crazy!
Victor Albert Flores VI
Carlos Roberto Flores
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