Carlos: Last time I wrote I said that they are taking Carlos off his ventilator, instead of going straight to a high-flow oxygen set up they put him on CPAP which is basically a mask that forces more air into his lungs and helps him get the hang of breathing. Well he did so good on that a couple days later they put him on a regular high-flow oxygen so now we can finally get a good look at his little face! More importantly Iliana finally got to hold the little guy. They were getting a little worried about his feedings because this poop was a little watery but it has gotten better. They are feeding him around the clock now though instead of the 12cc he was getting he is getting a continuos feed so like 2 or 3cc every hour instead of they whole thing every 3 hours. He had an eye exam and so far everything is looking normal. This boy right here is already extremly spoiled, and he definetly knows how to throw a fit!

Victor: Not much has changed with him. They still have him off his feeds but he is still getting everything he needs through IVs, and they are working great because he now weights 2 pounds 12 ounces! They are hoping to start feeding him again next week but they want to get him high-flow settings down a little bit more. They also checked his eyes and everything is looking good with him so far. We cannot get over the fact that he is gaining so much weight they say that a little bit of that might be because he is swollen but he is still doing really good!

No More Ventilators!

Carlos: Today our little man will be coming off of his ventilator! We never thought this would happen and today Iliana will be able to hold him. He is doing so good, they have upped his feeding to 11cc and is off of the IV nutrients completely. He had a head scan yesterday and there are no changes at all. This is such a big day for him and we are very excited we will finally be able to hear him cry and see his face without everything on him. I will try to get pictures up as soon as I can.

Victor: So he had to have a procedure done on Monday because he was not going poop like he was supposed to so they put some dye down into his intestines to see what was going on but it seems like he just doesn't like to poop or something because nothing seems wrong, they put him on a laxative to see if that will help and as soon as he passes all the dye out of his system they will begin feeding him again. His head scan also can back with no changes at all, and besides that not too much has been going on with him we have just been waiting to see what he wants to do next.

We are so excited that both of our boys will be off of the ventilators, this is a huge accomplishment and we hope that they continue to grow and stay in the right path. We want to thank everyone that comes to this page for their thoughts and prayers it really means alot to us.

Finally An Update!

First off I'm sorry to everyone that i have not updated our blog in a really long time. I come with plenty of pictures and good news though so hang tight.

Carlos:
Ok last time I was on here Carlos had just gotten his surgery. The doctors have been very pleased with the progress of his stomach. They started on feeds again this past Monday and he has been taking to them very well, they started at 1cc every 3 hours and are now up to 2cc. The bleeding on his brain has stabilized there were no changes last time he had a scan, so in the next couple days he will have another one to see how everything is up there. He is completely off all support medications, and has turned down his sedatives alot, to try and wake him up and get him a little more active. Now last night when i went in to my surprise our little man was off the JET ventilator, something we didn't think would ever happen, so next step is off a ventilator completely like his brother but Carlos being Carlos is probably gonna make us wait for a little while. The little man finally hit the 2 pound mark, and i even think he was smiling the other night. We have come to learn with Carlos patience is key he really likes to take his time and be babied.



Victor:

So as you have seen we can now hold our little Victor. The first time Iliana got to do some kangaroo care which is when they put him inside the shirt and let them have skin to skin contact which helps keep the little guy warm, and they both loved it! Since then we have held him, and we cannot wait until our little Carlos decides its time for us to hold him too. They had started feeding him the same time as Carlos and he was doing good but they had to stop because his stomach started to get a little big and he was not pooping, that caused a little worry but a couple days after he finally started to pass everything through so we think they are gonna try again with the feeds on Monday. He has been doing great off his ventilator and is off all sedation meds. His last head scan came back with no changes so he has another next week to see how things are going. Even though he has not been getting his feeds he is on IVs getting everything he needs and the little guy is now around 2 pounds 5oz!